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Rank: Member  Groups: Registered
Joined: 2/8/2010 Posts: 11 Location: Cheltenham
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quick q, have a mortons neuroma, scans and stuff show it's around 5 something, past point of injections blah blah and it has to come out,
i was told to stick to a foot specialist, not an ortho surgeon, this costs money obviously which is kinda fine but question is i may just leave it till it get's really bad, walkings obviously not good but don't want to spend the time or money getting it done just now
to ask a surgeon about leaving it means appointments so anybody know if ok to leave it till it becomes unbearable ?
Thanks, N
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 872
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hello there,
im v sorry but dont know enough to advise any, although i believe this is related to swelling around the nerves of the foot?
Are you with a speciailist team for RA? If so, you should be able to get access to Podiatrist to discuss therapies and get advice about what to do including any footwear etc which may help situation possibly?
Sounds as tho' you have already been down the steroid injections path?
It's quite likely there will be some peeps on here able to advise much better than I can,
Also, maybe NHS Direct would be able to point you in the right direction for advice 0845 4647
Hope you manage to get some answers ~ Liz
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Rank: Member Groups: Registered
Joined: 2/8/2010 Posts: 11 Location: Cheltenham
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no worries thanks Lizziemouse
prob a dangerous question but just interested to know
N
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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Hi Neilos
Think Lizzie's idea of approaching your rheummy team is sensible for starters.
As for leaving things until you are unable to stand - well, I guess it's really up to you - it's your body after all.
The only thing I would say in favour of not leaving things 'til the last minute (having had replacements) is that the op may be more complicated/bigger job/longer convalescent time afterwards the longer you leave it.
Take care and let us know how you get on
Jeanxx
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Rank: Member Groups: Registered
Joined: 2/8/2010 Posts: 11 Location: Cheltenham
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Thanks Jeanb, good advice, unfort don't have a rheumi team as currently private in london
will do
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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If your rheummy also works for the NHS you could ask to be transferred onto his panel. Many of us have been down the private route but then at a later date, transferred into the NHS. I have to say it was the best thing I ever did, as I now get "joined up" treatment! Does depend, of course, on where you go and how good the team is.
Jxx
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Rank: Member Groups: Registered
Joined: 2/8/2010 Posts: 11 Location: Cheltenham
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Sure, have tried that route but had terrible experience in cheltenham, know exactly what youre on about with 'joined up', planning to come back at some point but may try bristol.
and they say postcode lottery isnt true ! Funnily enough the chap i'm seeing in london who's brilliant left the nhs only a short while ago, so had i been in his area life would sure have been alot simpler.
Still a nice train ride now and then from cheltenham's just fine !
Appreciate the advice, N
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Hi Neilos,
I had 3 mortons neuroma. It took 2 and a half years for anyone to believe that's what they were as they were so big and causing so much pain. The rheumy thought it was bursitis caused by RA. I was referred to a podiatrist first who thought they were large neuroma and injected them with cortisone using ultra sound. Not a pleasant experience. I was then referred to an orthopaedic surgeon who finally took them out over 3 years later. The pain levels used to vary depending how much inflammation I had from the RA. I don't think it is dangerous to leave them if they are not causing too much pain but can assure you that it's horrendous if you leave it too long.
Julie
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Rank: Member Groups: Registered
Joined: 2/8/2010 Posts: 11 Location: Cheltenham
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Sounds good advice, thanks, N
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 872
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Hi Neilos
My consultant is based in Cheltenham Dr Coombs i see her in the Forest of Dean but i believe Cheltenham is her main base,
My team at the Dilke Hospital in Forest of Dean are very good especially excellent physio and OT. Dr Coombes comes out the Dilke to see patients here.
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